Jamie Nakamura

Photo by Douglas Kreitz

Jamie offers this advice, “Learn to accept and live with your illness because it will always be a part of you.”

For 15 years Jamie Nakamura and her parents have felt like they’ve been on a roller coaster, with more downs than ups. Jamie was born 3 ½ months premature with an imperforated anus, kidney reflux and blindness in her right eye, and later, was diagnosed with a serious brain condition. Jamie, however, has maintained a bright outlook, strong sense of self and appreciation of life, and looks forward to being a role model to others facing medical challenges.

Shortly after birth, Jamie received a temporary ostomy and an artificial eye. Growing up she refused to let these conditions hinder her, learning karate, softball, tennis and basketball.

Then at age 10, Jamie suffered a minor stroke due to Moyamoya disease, a disorder in which the arteries at the base of the brain become blocked. She underwent two major brain operations within two weeks. Her positive attitude, however, never faded and she inspired those around her with her strength and bravery.

Through all the ups and downs, Jamie has relied on the support of her family and, most recently, her friends at Youth Rally, a summer camp for kids with bowel and/or bladder dysfunction. Wanting to reach out to others, Jamie has joined her high school service group and participates in local outreach projects that support low-income communities.

Today, Jamie, 15, lives in Honolulu, HI, and enjoys dancing hip–hop and playing the ukulele. She is considering a profession in eye care and offers this advice to other teenagers dealing with medical challenges, “Learn to accept and live with your illness because it will always be a part of you. Trust that your family and friends will always be there to help you through the dark times.”